On the Journey XV....and probably last.

Medical followups and such..

I had my first post-treatment mammogram on Monday, then a follow-up appointment with my medical oncologist on Thursday.

The mammogram was clear, praise be to God.

The cehmotherapy did put me into early menopause. I could do without the mood swings and hot flashes, but I wouldn't want to have done without the chemotherapy, so I'll take it!

I'll be going back every three months for a while, just for follow-up and making sure all continues well.

In physical terms, I am getting back to normal. My hair isn't back to the length I would like, but that's just a matter of time. I have heard several times that it looks good at this length. That ma be true, but it's not where I want it, it's not the image I have of myself, so yes, I'm going to keep growing it. I have a photo of myself taken back in the summer of last year, and that's my benchmark--y hair then was a good length, a good colour. That's my goal for my hair, my appearance, my own self-image.

It's not about vanity--it's not that I want to look good, simply for the sake of looking attractive. It's about looking like me. To me, I do not look like myself right now.

So there's the medical update--the 15th and, I think, last. Even though I will be going back in for periodic follow-ups, I think most of this is behind me now, and I'm ready to move on from the regular updaes here. Any new developments will be posted, of course, but for now, this journey is over.

On the Journey XIV

Hmm, those Roman numerals are starting to get complicated!

I have finished radiation (as of a week ago) and so am done with cancer treatment!

I'm feeling conflicted, to be honest. On the one hand, I am celebrating the end of chemotherapy and radiation--no more abusing my body in the name of saving it. On the other hand, I'm feeling a bit worried--what do I do now? When I was in treatment, at least I knew I was dong something about the cancer. But that's all done, we've done what we can until and unless it shows up again. I don't know why I got cancer, and therefore I can't do much to prevent it--and might not be able to, even if I did know. So I'm at loose ends.

I'm continuing to heal though--the burns and sore places from radiation are pretty much gone. I still have yucky nails and tingly fingers from the Taxotere. I have my compression sleeve for the lymphedema and it seems to be working. And my hair is growing! I actually had it trimmed last week--cleaned up and evened out. We're waiting for it to grow out a bit more before doing much more with it. It looks like all that grey/white may be from the chemo, as I have a lot of dark roots.

I'll meet with my oncologist on Monday, when I get the plan for the next few months. I already have a three-month follow-up appointment with my radiation oncologist. My first question will be about getting this port out--it will seem more like treatment is over if that's gone.

I'll keep you posted!

This and that...

I have become very lax about blogging--a combination of low energy and nothing really to say right now!

I'm feeling pretty well. Completing the chemotherapy has made a huge difference in how I feel. My hair has begun to grow back--it's about 1/4 - 1/2 inch long. Sort of duck fuzz. If it were a bit warmer out, I'd be tempted to go without a hat. As it is...Winter is not over in River City!

However... I've developed a condition called lymphedema, or LE for short. What is lymphedema? I hear you saying...

Short course:

Part of breast cancer surgery (whether lumpectomy or mastectomy) involves removing one or more lymph nodes from under the arm, to see if the cancer has begun to spread (they did find cancer cells in one of the 20 nodes removed in my surgery). The lymph nodes are part of the lymphatic system, which filters and clears toxins, infections, and general junk out of the body. When lymph nodes are damaged or removed, other nodes generally take up the slack. In cancer treatment, that sometimes doesn't happen, or the remaining nodes are overstressed by chemotherapy or radiation. When an infection occurs (might be as minor as a kitchen burn or a cat scratch) lymph fluid can build up in the arm. It becomes swollen and sometimes hard, stiff, and painful. Treatment is elevation of the arm, massage (either by someone specially trained, or self-massage), and compression sleeves/gloves of various types. It will never go away completely--even if the swelling is gone, I am at high risk for it to return with an infection or a plane flight.

That's what has happened to me. I had risk factors for it that I was not aware of--no spleen (which is part of the lymphatic system; it was removed when I was 10 years old), a couple of major injuries to that arm, and many nodes removed.

The cancer centre has been wonderful--I would have liked some more warning that it might happen, but now that it has, they have swung into action. I went to an LE clinic this week, and have begun the process to get the compression sleeve (it has to be fitted, the off-the-shelf ones do not work as well). The radiation tech told me she didn't think it would slow down my radiation therapy, but i will meet with the radiation oncologist on Tuesday and see what he thinks. I really don't want to delay it at all!

But it brings home to me that breast cancer (or any cancer) is not only about the surgery, chemo and radiation therapy. There are ongoing issues, life-changing issues that I will have to deal with the rest of my life. LE is the one I will have to deal with (besides the constant worry every time I have a mammogram). Other women have to have breast reconstruction, or their ovaries removed (because estrogen released by the ovaries "feeds" the cancer), or have both breasts removed because they are high-risk...etc.

I will deal with this--at least I was able to have a lumpectomy. Once I learn how to live with LE, I am sure I will be fine. My father had diabetes and he learned to deal with it--I can do the same.

Moving on from medical issues....

I am continuing to restructure my life with Strong Heart as a friend rather than partner. We have been able to get together a couple of times to talk and all has gone well. She is continuing to support me around the breast cancer issue--she promised to walk through it with me, and she always keeps her promises. I am trying to return the favour this weekend, as she is candidating for a pulpit. In a very curious (to me) way, we are doing better at supporting each other now than we have done for several months.

I;m rediscovering life as a single person. Some of it is simpler--I can make decisions about the weekend without consulting anyone else's schedule, certain groceries don't need to be picked up anymore--and some of it is more work--no one else helps with housework or errands--and some of it is lonelier--I still don't like going to a party alone, although that usually vanishes after a few minutes and then the upside is that I can leave when I like. As someone said, "When you live alone, you can put something down and know it will still be there when you come back. That's a good thing if it's a book. It's a bad thing if it's a half-full coffee mug and it's three days later."

On the professional front, I'm looking into interim clergy training. I don't know yet if I have the temperament for it, but I'm applying to my denomination's program. Unfortunately, there's a hold on training at the moment (the economy rears its ugly head), but they're still opening files on people who are interestd. I'm also exploring moving on. River City has been good to me, but I'm feeling God may be calling me to a new place. No ideas on that yet and no firm plans--looking into possbilitiies.

I'm also trying to reorganise my life a bit. Not only clearing the clutter in case of a possible move, but in creating more of a routine for my week, setting aside reading time or sermon-writing time and simply not making appointments during that time, for example. I'd also like to have more of a routine for my day. That's difficult when every day is different in terms of a schedule (Monday I'm off, Tuesday and Wednesday I'm in both River City and Sister City, Thursday I'm in Sister City in the afternoon bu no office hours in River City, etc.). And of course all of this has been thrown off by the radiation treatments, which are scheduled anywhere from 7 am to 9 am... Routine?

We're getting teased by spring in River City--but I am not going to be tempted into putting out the porch furniture, because I know that's the surest way to have a blizzard!

On The Journey XIII

Two days away from beginning radiation...

I'm scheduled for 35 treatments (5 days a week for seven weeks). It seems like a lot, but it's pretty standard for someone with my kind of cancer--grade 3 (very aggressive) and triple negative (not receptive to hormones, thus no hormone treatment like tamoxifen is possible for me after radiation). This is, basically, our one chance to hit the cancer and hit it hard--if there's any still there after the chemo. We don't know, can't know (there's no test to see if you have any cancer cells floating around in your body), so we have to do all we can.

The procedure itself is like getting an xray. I'm put in position (the techs are guided by the tattooed dots I received during the planning session back in January), which allows the radiation beam to be tightly focused on just exactly where the tumor was, and thus affect the rest of my breast/skin less. The beam is switched on for a few moments, then off. And that's it. As someone said, it takes longer to get ready and then dressed again than it does for the treatment itself.

Side effects--possibly some skin problems like redness, itching, sunburn-like irritation. Sometimes it actually blisters, but that's fairly rare. Fatigue is another one, because the beam does affect the ribs and breastbone, which manufacure blood cells--so if that capability is affected, there are fewer red blood cells (which carry oxygen) floating around, I'll get weary more easily and be less able to bounce back. I'm very much hoping that doesn't happen--I'm just atsrting to get back into my life after chemo, and I don't want to have to cut back again.

I still have some lingering side effects from the chemo. My hair will take another few months to grow back to a reasonable length--I'm at 1/4 inch right now! Peach fuzz, really. The other one that's a bother is tingling/numbness in my fingers and toes--this is from that last med I used, Taxotere, which is known for this. It's also supposed to go away in a month or two.

Otherwise, trying to get back into life, getting ready for the radiation (good book and emu oil at the ready!), and looking forward to spring!!

On the Journey XII

I am DONE with chemotherapy!

My last treatment was Wednesday morning February 18th! It went well--no problems with access or reactions or anything like that. The oncology nurse, Betty, apologised that they were out of their "last treatment goody bags," and told me to be sure and get mine when I come back for my port care appointment next month. Apparently there's bubbles to blow and nice scents to put on (since you're asked to refrain from perfum during treatments). Goody bag? Heck, I'm just glad it's over!

The next step is radiation treatments. These are external beams of xrays used to kill any other cancer cells. Some of the treatments will be spread, to get the lymph nodes under my arm. Others will be more tightly focused, on the area where the tumour was.

I'll get a dose every day, five days a week for seven weeks, so 35 doses total. The last five will be "boosts," or more intense doses.

Side effects are skin irritations (redness, swelling, itching, burning, maybe even blisters or skin breakdown, although that's unusual) and tiredness (because the ribs, which are getting some radiation, produce red blood cells, which carry oxygen. The production of red cells may be down, so the blood can't carry enough oxygen and you feel tired). Also, according to my sister who went through radiation, the boredom of going to the clinic every. single. day. for. seven. weeks. But after chemo, I'll take it!

Good news--my hair is beginning to grow back already! About an 8th of an inch, but it's hair! And I'm seeing little black dots on my eyelids and in my eyelashes, which tells me they are growing back as well. Yay!

This weekend I spent at my mother's--she's spoiled me and taken care of me, which has been great. I've had fewer issues with the mouth sores this time around, which I attribute to the nasty medicinal mouthwash...hate it but it works.

I'm heading into a busy week--usual work, Ash Wednesday (and I am offering the reflection at a joint worship service), then a wedding Saturday and possibly a dear friend's birthday party on Saturday eveing, preaching on Sunday....an all-day seminar nex week...Yes, I'd best rest up the rest of today and when I can the rest of the week!

I'll keep you posted!

On the journey XI

I have ben very remiss in my postings--I do alogize!

I had chemo #5 of the 6 doses yesterday. This is the one that makes me very fatigues--Taxotere. Other side effects are dehydration, lowered blood cell counts, bone pain, difficulty eating (loss of appetite, odd tastes, dry mouth, etc.)and hair loss (well, I had the last with the other meidcations as well). My mom is here this time and helping out with those things that need to be/should be done around the house but that are difficult for me to do--vacuuming, dusting, etc. She's also a hugs help in cooking when I just don't have the energy to get up off the couch. She brought a ton of food with her--a pan of mac and cheese from my sister (best ever!), a chicken casserole, brownies, stollen, plum pudding, cinnamon rolls and banana bread, not to mention a bag of Hershey's minatures (yes, we're taken care of in the carb department!).

I feel very lazy, to be honest, sitting here on the couch with my laptop while Mom is cleaning house for me, but to honest, I would be able to do more than vacuum one or two rooms before i was worn out. So I'm going to swallow that guilt and just let her be Mom!

There's other news... The final report from the grant has come in and we'll be presenting to the leaders in the community next week. Very interesting results--we do seem to be on the right track with our focus on LGBY youth and seniors, but maybe we could go about it differently. And we were able to pinpoint some issues with fundraising as well.

Finances at the church (speaking of finances) are not much better. It's a matter of fewer folks in church (for a variety of reasons) and everyone having less disposable income. Not good, not fun, but when members are worried about paying thir utility bills (and they are higher than usual, with the cold snowy winter we've had so far) and not sure how long they will be employed (if they are still employed), well, it's diffcult for them to put that usual $5 or 410 or $20 in the offering plate. I sympathise but I also know that on my limited income I'm also able to make some kind of donation every month... But I try not to be judgemental, knowing everyone's situation is different.

Well, starting to fade again...must be time for a nap.

I'll keep you posted!

On the Journey X...

The last couple of chemo treatments have really hit me hard. Fatigue is becoming a way of life.

However, today I was able to feel a bit more hopeful. I had my radiation consult, and have learned that I will need 45 doses of radiation...that's five days a week for seven weeks. On the one hand, it seems interminable--it's longer than Lent, after all!--but on the other, the side effects and logisitics are so much more do-able, to me, than the chemo, that I will be glad to deal with them! Get up and be at the clinic every morning at 7 am? Sure! Use special lotion? No problem!

The side effects are skin irritation and fatigue, with a slight possibility of arm swelling (lymphedema). Those are, to me, something I can handle. I know the fatigue may get to me, and, given the schedule, probably right around the time I most need energy--Palm Sunday and Holy Week. But I can start working on things now--work ahead for once in my life--and hopefully stave off some of that. And of course I have my wonderful deacon and Strong Heart and others to help as well.

I've started a new chemo drug--Taxotere--and it's a bit rough. Mostly fatigue, again, although there are other issues I will spare you. Suffice to say that meals are bland, soft and thin these days.

I do have other thoughts and other things going on in my brain...and I will write a separate post for those--after all, there's an important inaugeration coming up in the States!

I'll keep you posted!

On the Journey IX...

Between the season and chemo, I have just not had much extra time or energy recently. Still, I should have updated this a long time ago!

This round (December 17th) has left me very tired. Well, tired isn't the right word. If you're tired, you can get some sleep and feel better. This is what the doctor calls fatigue...no amount of sleep takes care of it; I can wake up from eight hours of good sleep feeling exhausted. And unliek some of the other side effects, there's nothing to be done about it. So I'm trying to work around it, cut back, reschedule...whatever it takes to get through.

We've had a tough winter already here in River City, too--as many places in the US and Canada have had. Not being able to clear my own sidewalk has been a frustration for some reason. However, I did bake the three Christmas cookies I wanted to make, and the tree was up and decorated.

Our Christmas Eve service was shared with our host church, and went very well--a modified lessons and carols service. Then I went to Big Sister City Church and attended their Christmas Eve services. They were wonderful...the choir is amazing and talented, Boss Pastor was in fine form, Strong Heart glowed with the Spirit, Intensives Friend was so warm and embracing--just glorious worship experiences, both services.

Next day I was off to my family in Capitol City--more good food! My brother-in-law made his special spice rub for the prime rib, and we had the traditional (for us, a German-British family) Yorkshire pudding and gravy, as well as Waldorf salad (AKA apple salad).


We had a lot of conversation, good food (maybe too much!!) and relaxation. The only downside was my mouth sores...timing was terrible! I couldn't enjoy meals as much as I would have liked to, and even conversation was uncomfortable sometimes. They should be better in a day or so, though.

Worship today is lessons and carols, so an easy day for me--I don't know how I would have preached a sermon, as it really is painful to talk for very long.

Another busy week ahead--renewing various official documents, catching up at both churches--but with the oasis of New Year's Eve/Day in the middle. Strong Heart and I plan on a quiet evening in with a good dinner, maybe the Denizens of the Little Yellow House over for a bit, a movie, and munchies, followed by a restful day of sleeping in and relaxing.

I'll keep you posted!

On the Journey V

Continuing to feel good. I know that over time this may well change--the body can fight off a one or two time dousing of poison (which is what chemotherapy is, after all) but after a while it gets tired. But so far so good!

Slept very well last night, which is a relief after the couple previous nights! My appetite is doing odd things...the vegetable lasagna I had loved over the weekend and saved myself a bit of for lunch yesterday turned my stomach when I even looked at it yesterday...maybe the tomatoes? So I'm doing the bland thing--pudding, tuna, crackers, applesauce, cottage cheese, etc.

But otherwise no complaints. I'm working my semi-secular job today (which I had better get to) and then perhaps to a friend's band's gig tonight. Have to see how I feel, but I'm pretty much free tomorrow and no sermon to write (house church on Sunday).

I'll keep you posted!

On the Journey, IV...etc.

Wow, lots to blog about.

First, I was not accepted into the clinical trial. The central lab that re-tests all the tissue samples says that my cancer is estrogen receptor positive, so I am not eligible for the triple-negative trial. My oncologist says I am borderline (you just knew these things weren't clear-cut, didn't you?) and I am more to the negative side than the positive. He's asked the cancer centre pathologist to look at my samples again, but he thinks it's still negative, and we'v decided to proceed on that assumption.

He also told me all my heart test results came back in the excellent range! Apparently my heart is functioning as well as that of an athlete--and he wasn't being ironic! I have no idea how it got to that state--as anyone who knows me will tell you, I am pretty far from an athlete! Wow...three exclamation points in one paragraph--time to move on.

So today was my first chemotherapy session. It went well. I got there way too early--anxiety makes you do odd things--but they took me in right away anyway. They gave me steroids to fight nausea (along with a couple of other meds to do the same thing), and the 'roids are making me a bit hyper (see exclamation points above!). The first med was given IV, and slowly (since it was my first time). The second and third meds were given via injection in the IV line. My port looks good, and the nurse changed the dressing for me. I can't get the stitches out until Friday, but they look fine too. And as usual, the staff were amazing! Caring, expert, funny, even. And Butterfly Nurse (who was my nurse today) liked my tat...

Strong Heart was with me the entire time, we prayed beforehand, she held my hand at the ouchy parts, she talked to me, made me laugh, and took me to Windy's for lunch after (possibly a dumb idea, but I had a craving for a cheezburger). Last night when she arrived home, I was crying--before she even said hello, she asked what was wrong. It was nerves and over-thinking things--but she listened, she calmed me. Strong Heart continues to be a blessing to me.

So far, no nausea, no headaches or funny tastes or any of that (just red pee, as I was warned, from one of the meds...sorry if that's TMI). Of course, it's the first time, but this bodes well. We'll see how I feel tomorrow.

And one of the best things about today was the election results! Not only the national ones (my greatest relief and hope), but two statewide initiatives where Strong Heart lives too. Medical marijuana and stem cell research...both hot button issues, and some complex ethical questions in the latter case.

So now I'm feeling a bit wired still, but tired at the same time, if that makes sense. I'm off to bed with a cup of hot tea, my iPod and a good book (The Battle for God, by Karen Armstrong, about fundamentalism in Judaism, Islam and Chrsitianity--great reading, folks, and highly reccomended).

All in all, as Tony would say, "I'm greeeaat!"

I'll keep you posted....

On the Journey....III

The whole thing is becoming more concrete.

Thursday I had a port (stent/cath/shunt) placed, so that I don't have to get a needle everytime I get chemo. It's about the size of a quarter (although it feels much larger), with a tube running to a large vein in my neck. It just makes the whole process of chemotherapy easier for me and the staff sdministering it. They can also draw blood through it. As I apparently have "small veins" (which means "difficult to stick") minimizing the number of needle sticks is important!

I was back at work yesterday, although I did not stir out of the house last night. There were several events I wanted to attend. Band Named After a Household Appliance had a gig, there were two art shows opening, and of course the usual Halloween fun. I thought of last year when Man About Town and I went to a local bar and watched the people in costume going into the local "young people's bar" and picking our favourite costumes--I liked the light-up Christmas tree. That was also the night Man About Town was asked by a stranger if the stranger could ask me to dance...MAT was not only not my partner, but gay. He told the stranger, "You'll have to ask her!" We still chuckle about that one...

Anyway, next week--yeah. Monday I meet with the nurse running the clnical trial, then my oncologist, to be sure everything's on track for Wednesday. Then Tuesday morning I meet with a possible spiritual director. Tuesday night Strong Heart comes over, and Wednesday afternoon is my first round of chemo.

There's an election in there somewhere too...

Seriously, I have already voted by absentee ballot, and while I am working on Tuesday night, I will have one of the election sites up on the work computer. I doubt we'll stay up late waiting for the results, but I do plan to watch for a while after I get home (c.8:30). Not many results until then anyway.

For my US readers--have you or will you vote? This election feels critical to me. We all need to take advantage of our ability to make our wishes and opinion known--so vote!

It is What It is...

...And what it is, is an aggressive form of breast cancer--a "triple negative," in fact. There are three forms of hormones, as I understand it, to which it might be receptive or sensitive. Any one of them could be used for treatment (Clarification: the hormones "feed" the cancer/tumour--assuming there are any cancer cells left or, possibly, unidentified tumours elsewhere--so by eliminating those hormones from the patient's body, the tumour/cancer is "starved" and dies). Unfortunately, mine isn't sensitive to any of the three (and so eliminating them or stopping my body's production of them, will not affect the cancer). Therefore, it will be treated aggressively.

I'll be getting a total of six cycles of chemo, each of three weeks. During week 1, I'll get the chemo. Then I have week 2 and 3 off, then the next cycle starts with week 1 and chemo again. That repeats for six cycles. I'll be getting two kinds of chemo, one is a "cocktail" that goes by FEC for short--I get that the first three cycles--and then docetaxol for the second three cycles. Once that's all done, there will be radiation therapy.

This is going to be complicated. When people talked about needing energy and time to cope with chemotherapy, I thought simply of the physical side of things. But, wow! I have to have blood tests drawn at the clinic the week before chemo, then see the doctor a couple days before chemo. Then a week-10 days after chemo, I have to have blood tests again. And then it's about time for the pre-doctor's visit blood draw again. Periodically I will also have to have heart tests. Before I can even begin, I have to be sure my vaccines are up to date, be tested for Hepatitis and HIV, and have a stent placed. Luckily, my surgeon already had me get a bone scan and some baseline ultrasounds.

It will probably get more complicated, as I hope to be accepted into a clinical trial for a drug under development for the "triple negative" tumours. That will require more tests; but at least they can give it at the same time as the other chemo.

So now I'm doing what I can to get ready--from the medical stuff to planning worship for the next few months to making sure my car is in running order to replacing my wonky stove (I know its quirks, but I'll probably have friends and family cooking on it and they don't know the tricks...).

I do plan on a "shaving party," as most of those chemo drugs have hair loss listed as a "usual" side effect; the other one says "frequently." I'd say the odds are pretty good I'll lose some! So my plan to crop it very close (and Stylist and I have been working so hard on growing it out! Oh well...) and then I won't notice it so much.

Strong Heart and I are very pleased with my medical oncologist. It took him a few minutes to adjust to the fact that SH was my partner, not simply a good friend (it's a cultural thing), but once he did, he carried on just fine. He's patient, clear, willing to explain, to discuss (instead of decree), and genuininely caring. For that matter, all the staff (and I mean everyone--social workers, pharmacy techs, nurses, volunteers, lab techs, etc.) in the cancer centre seem to be the same way--caring, focused on what will make life easiest for the patients and their families, supportive of what the patient needs, etc. A very positive experience--as positive as possible, anyway, given the circumstances.

And I'm going to need some positive experiences! The church is still struggling, looking for solutions to the financial crisis. One consolation--we are not alone in our struggles. Most non-profits here in River City are facing similar issues. It's not just our short-comings--it's the economy!

My plan at this point to post about my progress in treatment--detailed but not graphic, partly as an update on how I'm doing, but also partly as a document of what this journey was like for me. Everyone has a different story (see last post) but this will be one woman's story, in any case. I'm committing to be as honest and as open as I feel comfortable--maybe pushing that comfort envelope a bit--so that this is a true account, not simplified or glossed over so that it doesn't worry anyone. It is what it is; and I'm getting wonderful treatment, and an amazing amount of support from all sides.

I'll keep you posted!

Update...to be continued...

Strong Heart and I visited the surgeon again yesterday.

The cancer is at Stage 2, which means that it was found in my lymph nodes, besides the tumour.

The usual treatment is radiation and chemo combined. We'll know more about scheduling and timing after we meet with the care team tomorrow (Wednesday the 8th).

It's not what I wanted to hear, but after wallowing in negativity for a couple of weeks, I got angry this weekend, and that got me out of it and now I'm in a positive place.

What got me out of that boo-hiss place? Well-meaning people who want to 1) treat me like glass and coddle me; or 2)tell me they know exactly how I feel because their sister/cousin/co-worker had breast cancer; or 3)tell me how I should be eating/sleeping/treating it, because of what worked for their sister's best friend's cousin's daughter-in-law.

I know they mean well, and so I do my best to respond graciously. SH gave me a great phrase to use--"Everyone's story is different"--and I embellish on it.

Sample: "Well, everyone has a different story. We really like my surgeon and we're going to see what she recommends. I'll remember what you said; but we really trust my surgeon."

So why does it make me angry?

• Because I'm still healthy--don't treat me as if I'm suddenly unable to do anything. I want to do as much as I can for as long as I can. I appreciate the support and love that people are trying to express, but I don't want to let go of what I CAN do until I have to.
• Because they DON'T know how I feel! The people who have survived cancer have simply told me that; "I'm a survivor," and nothing more. They understand.
• Because I need to trust my surgeon, myself, Strong Heart and my care team. The advice-proffering folks have no idea what my health status is like, my life circumstances, my options. I personally plan to fight this tooth and nail. I have a 19-year-old son I want to see graduate from university, get married, etc.; a partner I love and plan to spend the rest of my (long) life with; work to which I am called and love passionately; family I want to be with; friends; experiences I haven't had that I want to have--I am going to do what it takes to be there for all of that. That's my decision, and mine alone, and I want to be free to make it without any suggestion that what I'm doing may be OK in the short term but ruinous in the long term, or vice versa--or harder on SH than it needs to be, or bad for my health in other ways, etc.

I know they are all well-intentioned. So I smile politely and repeat, "We're very happy with the surgeon. Everyone's story is different. I'm fine for now--if and when I need help I will be sure to call on you."

(Note: I do intend to ask for and accept help when I need it, which won't be easy for me to do; but I don't just yet!)

Back to Normal?

Yeah, well, first define normal!

I led worship last Sunday, and will do so again this week. I started back to my semi-secular job (it's at another church of my denomination) this week, just two days, to ease myself back into it.

It's been hard, though, to get through a certain lethargy...I know there's a sermon to be written for tomorrow, and I want to write it, and I have ideas and plans for how I want it to go, but I can't seem to muster up the oomph to actually do it. I don't know if I'm still recovering from the surgery or if it's psychological or sheer inability to shift gears from enforced laziness.

I slept 12 hours last night--I haven't slept that long in years.

Well, Monday Strong Heart and I go in for the pathology results. Wednesday is the "intake" appointment at the cancer centre here in River City--that's when we'll get some idea of a schedule for treatments.

I continue to be amazed and touched by the support and caring of my friends, both here in River City, across the continent and around the world. Simply knowing people are holding me in prayer is powerful and humbling. Thank you for those prayers...and keep 'em coming!

And keep SH in your prayers too--she does so much for me and yet feels she isn't doing enough. Her love and strength have held me up many times these last few weeks--her presence in my life has been a blessing. If she had not been present, of course I still would be fine. But because she is here with me in this, everything is that much easier to bear.

Celebration!!

The surgeon says she thinks it is merely a cyst--to be monitored and checked again in three months, but not to be operated on!

Jubilation!!

And gratitude to the office staff and the surgeon, who with their graciousness and matter of fact acceptance of Strong Heart's presence with me, once again proved to me why I LOVE living in Canada.

It's Nothing?

Well OK. I’m taking a deep breath and jumping about putting this out there. I don’t usually like to talk about this sort of thing, but I may—just may—need all the support I can get. On the other hand, this may (I hope will!) be a tempest in a teapot. But just in case it isn't.

I’m having an ultrasound mammogram on Tuesday. Yes, there’s a lump. It feels huge to me—somewhere between an almond and a walnut. My doctor seemed a bit alarmed (I have a family history of breast cancer), but not overly so. She scheduled me for the procedure “ASAP” which is a step above "urgent" but not "emergency." She also warned me that depending on findings, they may want to do a biopsy then and there. I’ve had a biopsy before—it was not pleasant or fun and the fear of the results made it even less so.

So this may be nothing. That’s the attitude I’m trying to cultivate—just a test to make sure everything’s fine, which it is, blah blah blah.

The plus side—if there is one—is that the few non-blog friends I’ve shared this with have been uniformly caring and supportive in their various ways—holding me in prayers, reassuring me, promising me support. And Strong Heart has been simply stellar. Words fail me to describe just how, but she has been. “The sacrament of presence” pretty much covers it.

So friends—if you also would keep me in prayer on Tuesday, I will be very grateful. “For prayer avails much.”

Postscript: In rereading, I have realised how ungracious I sound about my friends. You are on the plus side of this, every one of you. Especially SH, who is going to be there with me on Tuesday.